We just learned our daughter has heterotaxy/asplenia syndrome instead of HRHS. It is a more complex and rare heart defect with many more complications.
There is so much unknown right now. We go back to another specialist in 2 weeks when I am 24 weeks along. The cardiologist will be able to see things better at that point. I wish we had more information to share but we just are waiting! We are praying for wisdom and strength.